Patient Information Resource Guide
Forming Effective Patient Partnerships
Consumer Health Resources
Partnership Practices: What Patients Want Providers to Know
- Behavioral Health
- Chronic Disease
- Combat Casualty Care
- Occupational Safety & Industrial Health & Hygiene
- Perinatal/Prenatal Care
Consumer Health Resources
MedlinePlus® is the National Library of Medicine's premiere consumer health website which provides links to thousands of health information websites including the institutes of the National Institutes of Health. Access a health topic from the alphabetical list, the body location image map, or use the search box. MedlinePlus features also include: directories of hospitals and physicians, a medical encyclopedia and dictionary, prescription and nonprescription drug information, health information from the news media, interactive tutorials, and links to clinical trials. Information in MedlinePlus is also available in Spanish.
MD Consult (RCS Login Required) MD Consult contains over 2,500 patient education and patient drug information handouts that can be customized with your contact information. Locate the handouts by specialty, condition or treatment, or drug name. Spanish language handouts are also available.
In addition to your RCS password, access to MDConsult also requires a separate MDConsult login and password. Registration is free for USU RCS users. Once you have registered with MDConsult, you can access the Patient Handouts several ways:
Choose the Patient Handouts tab located at the top of the screen
Conduct a search of all categories and view the results summary list at the bottom left corner of the screen for the Patient Handouts.
eMedicine(RCS Login Required) EMedicine is an online medical reference library that contains peer-reviewed original disease specific articles authored by over 7,000 physician authors and editors.
To access patient education materials, choose the Advanced Search option. Type your health topic in the search box and check the Patient Education category.
Health literacy is the degree to which individuals can obtain, process, and understand health information and health services that they need in order to make informed health decisions. According to a 2004 report from the Institute of Medicine (IOM), 90 million people have difficulty understanding and using medical information. Change in health literacy will require input from healthcare providers: doctors; nurses; administrators; home health workers; the media; and others.
Institute of Medicine (IOM) of the National Academies
View the IOM report: Health Literacy: A Prescription to End Confusion, 2004 Full Report or Report Brief (PDF) Or, visit the Institute of Medicine for information on the IOM Health Literacy initiative.Agency for Healthcare Research and Quality (AHRQ) Consumer & Patient Information website contains information for consumers and healthcare practitioners. Download a summary of their report, Literacy and Health Outcomes (PDF) for the full report Literacy and Health Outcomes (PDF - 830 KB)American Medical Association (AMA)
offers articles, videos, and an educational toolkit on health literacy issues. Visit the American Medical Association Foundation for more information.Partnership for Clear Health Communication is a coalition that serves as an information source regarding the scope and impact of health literacy in the U.S., as well as what providers and patients can do to improve health communication in every provider-patient interaction. The Partnership offers the Ask Me 3 system...Ask ME 3 is a quick, effective tool designed to improve health communication between patients and providers. Ask Me 3 uses three questions that patients should ask their providers in every health care interaction. Funding for this program provided by Pfizer Inc.
Newest Vital Sign is a bilingual (English and Spanish) screening tool that identifies patients at risk for low health literacy. The tool can be administered in a clinical setting in three minutes. The test result provides information about the patient that will allow providers to appropriately adapt their communication practices in an effort to achieve better health outcomes. Newest Vital sign was researched by Barry D. Weiss, MD, professor of family and community medicine at The University of Arizona College of Medicine, in collaboration with colleagues at the University of North Carolina. Funding for this program provided by Pfizer Inc.
- PubMed Search: articles on Health Literacy & Health Promotion
The Center for Information Therapy. The Center for Information Therapy (IxCenter) is an independent, not-for-profit organization that aims to advance the practice and science of information therapy to improve health, consumer decision making and healthy behaviors. The Center promotes the use of information therapy prescriptions which are delivered to the patient as part of the process of care.
Article: Information Therapy - Improving Healthcare Through Patient Education,
from eHealthExecutive Series 12/16/2002Article: The Prescription of the Future: How Information Therapy is Putting the Focus Back on the Patient,(PDF)
from MDNetGuide (May 2004)
- PubMed Search: articles on Information Therapy
- Shared Decision-making
"How Might Clinicians Facilitate Patient Participation in Decisionmaking?", excerpt from, Shared Decisionmaking About Screening and Chemoprevention: A Suggested Approach from the U.S. Preventive Services Task Force. Article originally in Am J Prev Med 2004;26(1):56-66. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/clinic/3rduspstf/shared/sharedba.htm"Consumer Health Informatics and Patient Decisionmaking: Summary" AHCPR Research Report. AHCPR Publication No. 98-N001, September 1997. Agency for Health Care Policy and Research, Rockville, MD.The Krantz Health Opinion Survey, measures the preferences of patients for various treatment approaches including self-care. The original research is available from, Krantz, D. S., Baum, A., & Wideman, M. (1980). Assessment of preferences for self-treatment and information in health care. Journal of Personality and Social Psychology, 39, 977-990. A copy of the survey instrument may be purchased through Educational Testing Service.
- Decision Aids
The American Academy of Family Physicians maintains a list of free Physician-Patient Shared Decision Making Counseling Tools .The Ottawa Health Research Institute (affiliated with The Ottawa Hospital and The University of Ottawa) maintains an up-to-date database listing of patient health decision aids identified by the Cochrane Systematic Review Group that meet a minimal set of criteria. View the A-Z Inventory of Decision Aids online.
- How to be an Informed Health Consumer
In an effort to help consumers to become better informed and participate as partners in their own health care, the Agency for Healthcare Research and Quality (AHRQ) has developed materials to assist patients. For a full list see: Be an Active Health Care Consumer
- Patient-Centered Care
The Agency for Healthcare Research and Quality (AHRQ) Consumer Assessment of Healthcare Providers and Systems (CAHPS) program is a public-private initiative to develop standardized surveys of patients' experiences with ambulatory and facility-level care. The CAHPS program develops and supports the use of a comprehensive and evolving family of standardized surveys that ask consumers and patients to report on and evaluate their experiences with health care. Click HERE for an overview of the program's tools.The Center for Health Design (established in 1993), has been actively engaged in initiating research to promote the use of evidence-based design to create healing environments in hospitals, clinics, physician offices, nursing homes, and other healthcare facilities. The Center publishes a free e-newsletter, conducts training & seminars, prepares research reports, and markets a "Healthcare Design Action Kit" -- an environmental assessment tool, for purchase.The Epidaurus Project on Patient-Centered Medicine, in progress since 2001, is designed to address design principles having to do with making a healthcare facility patient centered. Architectural design and program design are critical elements that work in concert to allow the patient to serve as the focus of every encounter within the health care system, to make every encounter a healing encounter. The Epidaurus Project brings together architects, designers, healthcare policy makers, and bioethicists to examine the challenges and principles of patient centeredness. Participants are drawn from the federal government, academia, and the private sector. On 3 August, 2006, the Project conducted the Epidaurus Project Symposium which focused on specific elements of patient-centered design. Discussions included advanced healing interiors, therapeutic gardens, spiritual spaces, and "Green" design.The Institute for Family-Centered Care is a non-profit organization dedicated to the development and education of patient- and family-centered care in hospitals and health care settings. Their focus is on the planning, delivery, and evaluation of health care based on beneficial partnerships among patients, families, and health care providers. They support conferences and seminars and provide a list of a list of Resources and Tools for Change (free and for purchase) to help facilitate patient-centered care.
- Behavioral Health
Center for the Study of Traumatic Stress (Uniformed Services University of the Health Sciences).The Center for the Study of Traumatic Stress (CSTS) conducts research, education, consultation and training on preparing for and responding to the psychological effects and health consequences of traumatic events. These events include natural (hurricanes, floods and tsunami) and human made disasters (motor vehicle and plane crashes, war, terrorism and bioterrorism). The Centerís work spans studies of genetic vulnerability to stress, individual and community responses to terrorism, and policy recommendations to help our nation and its military and civilian populations. A number of topical Fact Sheets are available for download. Also available from the CSTS is the Courage to Care Newsletter created to provide physicians and medical leadership with information on timely topics related to military unique healthcare issues, as well as issues pertaining to homeland security and the nation's health. Courage to Care is in the public domain. Each installment includes a fact sheet for healthcare professionals and a fact sheet for families and patients. Courage to Care can be distributed in office waiting areas, or on an organizationís website.PDHealth.MIL created by the Department of Defense (DoD) Deployment Health Clinical Center is designed to assist clinicians in the delivery of post-deployment healthcare by fostering a trusting partnership between military men and women, veterans, their families, and their healthcare providers. Resources include Clinical Practice Guidelines, Education & Training, a Resource Library, and Family Resources.DoD Deployment Health & Family Readiness Library. This library provides service members, families, veterans and healthcare providers an easy way to quickly find deployment health and family readiness information. Information is available as fact sheets, guides, products, and links to other organizations and resources devoted to the health and welfare of the servicemember and their family. (For Patients)
- Traumatic Stress
- Traumatic Stress
- Chronic Disease
- Heart Disease
- Congestive Heart Failure
- eMedicine: Congestive Heart Failure (For Patients - RCS Login Required)
- MedlinePlus: Heart Failure (For Patients)
- Congestive Heart Failure: Health Promotion & Education (For healthcare providers)
- Congestive Heart Failure
- Combat Casualty Care
- MedlinePlus: Veterans and Military Health (For Patients)
- Department of Veterans Affairs, Office of Quality and Performance (OQP)Clinical Practice Guidelines: (For healthcare providers)
- OQP Practice Guideline: Biological, Chemical, and Radiation Induced Illnesses, Blast & Explosions
- OQP Practice Guideline: Post-operative Pain
- OQP Practice Guideline: Opioid Therapy for Chronic Pain
- OQP Practice Guideline: Post Traumatic Stress Disorder (PTSD)
- OQP Practice Guideline: Post-Deployment Health Evaluation & Management
- Occupational Safety and Industrial Health & Hygiene
- MedlinePlus: Occupational Health for Healthcare Providers (For healthcare providers)
- NIOSH Safety and Health Topic: Health Care Workers (For healthcare providers)
- Radiation Exposure & Protection
- MedlinePlus: Radiation Exposure (For Patients)
- Health Physics Society: Ask the Experts (For Patients)
- OSHA: Non-Ionizing Radiation (For healthcare providers & Patients)
- CDC: Radiation Emergencies (For healthcare providers & Patients)
- (CDC) Acute Radiation Syndrome: A Fact Sheet for Physicians (For Healthcare Providers)
- Perinatal and Prenatal Care
For further information, contact the Reference Librarian. (301)319-4039 Created 07/13/06 [nbm]. Last Update:09/26/06